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Activating awareness of EB and other rare disorders in Africa and MENA regions: a DEBRA Congress
About DEBRA
Yasmin El Samra Foundation - DEBRA Egypt
At the heart of the Yasmin El Samra Foundation lies a mother's unwavering love for her child, who battled Epidermolysis Bullosa (EB) until 2012. In 2014, Hanaa El Sadat embarked on a mission, spurred by her personal experience, to make a difference. In her own words: "I felt that Yasmin had a mission and I should continue her mission".
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With an initial group of 20 EB cases, she founded the Yasmin El Samra Foundation. Fast forward to 2019, the foundation's reach has expanded dramatically, now serving over 120 individuals with EB, encompassing various forms of the condition, from simplex to recessive dystrophic EB. Our community extends beyond Egypt, embracing those from other Arab countries such as Jordan, Saudi Arabia, Yemen, and Syria.
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The Yasmin El Samra Foundation is dedicated to offering unwavering support to children affected by EB. We empower families with knowledge, provide essential medical supplies, cover operation and testing expenses, and offer a helping hand where health insurance falls short. We stand by our commitment to improving the lives of those facing the challenges of EB.
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DEBRA International
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The first DEBRA group was founded in the United Kingdom in 1978 by a group of parents whose children had EB. From these humble origins, DEBRA has grown significantly and is now international in scope. Over the past 40+ years, we have seen the establishment of nearly 50 national DEBRA groups around the world all working towards improving the lives of those living with EB in their respective countries.
With an increasing number of groups sharing common goals and working on common activities, it became clear that more could be achieved working together than each group working alone. DEBRA Europe was established in 1992 to serve as the central body of an international network made up of DEBRA (and other EB patient support) groups as its members. The organisation subsequently became DEBRA International in 2008 to reflect the ever-increasing international scope of its membership.
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Empower people with EB and their support networks, advocates, healthcare professionals, researchers, and industry with the knowledge and tools they need to better the lives of those with epidermolysis bullosa (EB) worldwide.
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A world where anyone with epidermolysis bullosa (EB) has support from a DEBRA group, and access to specialist treatments, healthcare, and social support.
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